You Say I Now Have What?

Okay, on August 30th I blogged The Angel That Paved My Path and I told you about the severe pain I’ve been experiencing and how my Angel connected me with a wonderful neurologist! 👨‍⚕️

My new neurologist performed a number of tests to hopefully identify what was causing my severe pain. First he asked me several questions, have I always used a #wheelchair 👩‍🦼 how long have I been #paralyzed, how long have I been experiencing this pain, etc. Then he tested my reflexes and my sense of touch (cold or not, did I feel this or that). Based on his initial evaluation he thought that perhaps I had a pinched nerve, however, he wanted me to have an #MRI with and without contrast and then to call 📱 him 48 hours after the MRI to discuss the results and then schedule a follow-up appointment. In the interim, to help alleviate some of my pain he gave me a prescription 💊 which I was so very grateful to have!

9 days after my initial visit with my new neurologist I had the MRI. My appointment was at 9:15 in the morning. Because I am a #little_person, getting a vein is very difficult. Finally on the 4th try the needle was in place for the injection of gadolinium-based dye.

We finally got in our car 🚗 about 11:00 am, whew, glad that was done. Because the MRI was done on the Friday before Labor Day weekend and the next Monday was a holiday and most everything is closed, I was planning on calling the neurologist on Tuesday. But wait, surprise, my neurologist’s office called me 4:30 in the afternoon the same day! WHAT! 😲

Lucky me, I’ve just been diagnosed with ARACHNOIDITIS! As if being 1 of MAYBE 5 other #paralyzed #littleperson isn’t enough, I get to add this. First I had to ask WHAT IS IT? I have never heard of arachnoiditis, anyone else??

What is arachnoiditis?

Arachnoiditis is a pain disorder caused by the inflammation of the arachnoid, one of the membranes that surround and protect the nerves of the spinal cord. Severe stinging, a “burning” pain, and neurological problems characterize the condition. Inflammation (swelling) of the arachnoid can lead to the formation of scar tissue and can cause the spinal nerves to stick together and malfunction (not work properly).                                                                 -- Cleveland Clinic

Meanwhile, I have exciting news…… have you seen my announcement on Facebook or Instagram page?????? NO…. okay I’ll share here but come on over to my Facebook and Instagram page too!

Do you read IWO Magazine, if not NOW IS THE TIME TO START READING IWO MAGAZINE!! Don’t worry, I’ll remind 😉 you when my story is published!

As always, I wish you a journey filled with exploring new people, places and things – take time to learn from and enjoy each new adventure along your way!

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